Welcome!
The Yorkshire Dales Branch of the Motor Neurone Disease Association has the sole aim of serving all those in the area who are affected by Motor Neurone Disease (MND). This includes people with MND, their carers, family and friends.
MND is an incurable condition that paralyses the muscles leaving people unable to do the everyday things the rest of us take for granted. Walking, talking and swallowing may become virtually impossible, yet the mind and senses are rarely affected.
The Yorkshire Dales Branch was founded in1988 and is now one of over 80 Branches in the country. We have our own trained Association Visitors who are well supported by the Association’s Regional Care Development Advisers. We liaise with Health and Social Care Professionals such as Speech Therapists, Occupational Therapists and the Medical Profession.
We hold regular social events where friends old and new can meet for a little light relief. These include our annual Duck Derby, Christmas Dinner, and informal lunchtime get-togethers. More details can be found in our Newsletter which we fondly call ‘Chatter’.
Second new gene discovered in less than a year
Less than a year after the last major research breakthrough, collaborative researchers have discovered a new gene mutation that causes a rare inherited form of MND. Find out more at www.mndassociation.org/researchnews
Yorkshire Dales Branch is completely run by volunteers. We are always interested in hearing from people who can help with events or who want to get involved with running the Branch.
For information about the work of the Association, and up to date information regarding the disease, care and research, please visit the National Office website at www.mndassociation.org.
A National Strategy for MND
There is currently no official national guidance on how to care for people living with MND. The MND Association believes a National Strategy for MND is urgently needed to ensure people with MND receive the co-ordinated, holistic care and support they both need and have a right to expect from the NHS and social services, no matter where they live in the country. The Association launched its manifesto on 17 February which calls for a National Strategy to be urgently produced.
The Association is now building political support and support from the general public for a National Strategy for MND. Mark Todd MP (Chair of the All-Party Parliamentary Group on MND) has tabled an Early Day Motion (EDM) in Parliament calling for a National Strategy. The Association is asking all its Branches and Groups to write to their local MPs asking them to sign the EDM. Currently just over 100 MPs have signed the EDM and the target is 250.
The Association has also set up a dedicated website for its general election campaign (mnd2010.org). There is a petition on the website where everyone can sign up to support the campaign for a National Strategy for MND.
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Last Updated: April 2010